Friday, January 7, 2011

WTF!

Well pretty sure I am sick of being like this.  I will describe what each thing feels like:

Exploding legs - This feels like my legs are filled with something really heave and that they are going to pop.  Sometimes it hurts, sometimes it doesn't.  This is my least favorite thing, because it just drives me crazy.  Coupled with popcorn legs or electric ones, or all three makes me just want to scream...  I get this if I do too much, or don't sleep enough, and sometimes for no reason...

Electric legs - This feels like electric current like a continuous 1 or 2 on the e-collar.  But all over my legs, sometimes up to my hips..  This drives me crazy...  I get this sometimes for no reason, and sometimes when I do too much..

Popcorn legs - This feels like popcorn popping under my skin.  I have this everyday and it doesn't hurt.  I can see it all over.  Sometimes I get it all over but mostly it's in my legs.  What it looks like is tiny muscles jerking or quivering under and on the skin.  This doesn't drive me crazy unless it's happening with exploding legs...  I have had popcorn on the top of my head also...  So weird...

Sand - Sometimes it feels like an hourglass of sand is being poured into my legs.  Sand that never stops.  This doesn't hurt, but is annoying....  All of a sudden it will be gone...

Paralyzed leg - Sometimes when I am having bad exploding legs, at night I will wake up and will have the sensation of no leg there..  It's terrifying...  But if I flop around it just disappears...  My arms do it to...

Swampwalking - Sometimes my legs feel like they are wading through a swamp with suckermud and thick grass.  Was one of my early onset things.  It doesnt hurt...  When this happens I fall down sometimes...

Golfballs - Sometimes it feels like I am walking on golfballs and sometimes nerf arrows..  This happens for no reason, and was one of my early onset things...  It doesnt hurt...

Bricks - Sometimes if feels like I have bricks for feet.  Mostly because they are numb alot of the time I imagine...  I lose my balance when there are broken bricks.  Meaning, numb in spots but not others...  This doesn't hurt...

Pain - Sometimes (mostly) my hips hurt alot.  I don't know why worse than others, just know it is always there.  Sometimes my hand feels like it is broken..  Sometimes two of my toes just scream with pain and it quite hideous.  (this happens if they are not frozen numb which I much prefer)  Sometimes my right shoulder hurts for no reason, and because of this I can no longer lift the dogs up into the box...  Sometimes my skin on the right waist on down feels like boiling water is on it.  I used to take Neurontin for it but since that stuff makes me retarded, I stopped it...  Plus I just wanted to know if it went away...  I get weird stabbing pains all over the place for no reason....  Biggest complaint pain-wise is my hips and toes...

Dizzy - Sometimes I feel super dizzy for no reason.  I have fallen because of this.  I hold onto the shower wall because of this every day..  It's not the kind of dizzy where you feel like puking, it's like if you spun in circles like when you were a kid, and then just try to stand there..  It's like that.  Always in the shower unless holding the wall...

Numbness - I have numb stuff all over the place.  Sometimes my back is numb but I don't know until I am in the shower and don't feel the water..  I have made my back blazing red...    I have numb fingertips.  Numbe skin all over....

My doctor called a bunch of this stuff Transverse Myelitis as a symptom of my partifular MS..

Somedays, I just scream inside to myself.  Like this morning.......

1 comment:

  1. Ps... Doctor found a new lesion last week... I love it...

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